• The internet is a great way for people from anywhere to meet others at any time for mutual support. Social Media platforms like Facebook are great ways to do this.

    PPSUK has numerous social media channels.  Click on an icon below to follow us via Facebook, Twitter, Instagram and Instagram .

    For support, we particularly recommend our private Facebook Groups as a first step. When you join PPSUK you will be sent an email invitation to join the Group (provided you have supplied us with an email address and confirmed that you wish to join the Group). Please check your email spam folder as these invitations are sometimes identified wrongly as spam.

Help with Social Media

  • If you are new to social media (in particular, Facebook) or are unsure about it, watch the following video from the AMEND 2017 Annual Patient Information Day.

  • Using Social Media for Support by Jo Grey (AMEND CEO)